Recent publications
Article
Consensus group, Gagnier, JJ, Tavares de Arruda, G, Terwee, CB & Mokkink, LB 2025, 'COSMIN reporting guideline for studies on measurement properties of patient‑reported outcome measures: version 2.0', Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation. https://doi.org/10.1007/s11136-025-03950-x
Kyte, D, Fletcher, B, Horton, M, Damery, S, Aiyegbusi, OL, Anderson, N, Bissell, A, Calvert, M, Cockwell, P, Ferguson, J, Paap, MCS, Sidey-Gibbons, C, Turner, N, Verdi, R & Slade, A 2025, 'Development, Rasch Analysis and Validation of the Kidney Symptom Burden Questionnaire (KSB-Q)', Clinical Kidney Journal.
Unni, E, Schougaard, LMV, Aiyegbusi, OL, Mate, KKV, Austin, E, Greffin, K, Roberts, N, Grove, BE, Muehlan, H & ISOQOL Clinical practice SIG PROs in Telehealth Working Group 2025, 'Expert Consensus on Implementing Patient-Reported Outcomes in Telehealth: Findings from an International Delphi Study', Journal of Patient-Reported Outcomes.
Jones, L, Delicate, A, Waigwa, S, Hodgetts Morton, V, Morris, RK, Whitehurst, J, Hillman, S & Chapter Collaborative Group 2025, 'Exploring views and experiences of childbirth-related perineal trauma: a qualitative study protocol for developing a wound management tool and care pathway', BMJ open, vol. 15, no. 4, e088248. https://doi.org/10.1136/bmjopen-2024-088248
Thomassen, D, Roychoudhury, S, Amdal, CD, Reynders, D, Musoro, JZ, Sauerbrei, W, Goetghebeur, E, Le Cessie, S & SISAQOL-IMI Work Package 3 2025, 'Handling missing values in patient-reported outcome data in the presence of intercurrent events', BMC Medical Research Methodology, vol. 25, 56. https://doi.org/10.1186/s12874-025-02510-8
McMullan, C, Haroon, S, Turner, G, Aiyegbusi, OL, Hughes, SE, Flanagan, S, Subramanian, A, Nirantharakumar, K, Davies, EH, Frost, C, Jackson, L, Guan, N, Alder, Y, Chong, A, Buckland, L, Jeyes, F, Stanton, DE & Calvert, M 2025, 'Mixed methods study of views and experience of non-hospitalised individuals with long COVID of using pacing interventions', Scientific Reports, vol. 15, 14467. https://doi.org/10.1038/s41598-025-96319-6
Grumitt, G, Man, R, Vance, JL, Turner, A, Morris, RK, Morton, VH & CHAPTER Group 2025, 'Outcomes of suture material, suture technique and tissue adhesives for repair of childbirth-related perineal trauma: A systematic review and meta-analysis', European Journal of Obstetrics & Gynecology and Reproductive Biology, vol. 312, 114086. https://doi.org/10.1016/j.ejogrb.2025.114086
McMullan, C, Calvert, M, Hughes, S, Pyatt, L, Kern, B, Shaw, K, Asfaw, B, Besley, C, Buckingham, N, Ellis, H, Farrow, C, Mazza, M, Miller, R, Irvine, D, Jones, C, John, E, Sheikh, Y, Pugh, G, Yiallouridou, C & Aiyegbusi, OL 2025, 'Patient and caregiver experiences of CAR T-cell therapy for blood cancer in the UK: a qualitative study', The Patient - Patient-Centred Outcomes Research.
Anderson, N, Hughes, S, Aiyegbusi, OL, Collis, P, Miller, R & Calvert, M 2025, 'Patient-reported outcomes in integrated care: a frontier of opportunities and challenges', International Journal of Integrated Care.
Cruz Rivera, S, Buxhoeveden, S, Aiyegbusi, OL, Bozinov, N, Kamudoni, P, McBurney, R & Calvert, M 2025, 'The importance of patient-reported outcomes: a call for their integration in the routine care of patients with multiple sclerosis', Multiple Sclerosis. https://doi.org/10.1177/13524585251349354
Baddeley, E, Sivell, S, Retzer, A, Nelson, A, Bulbeck, H, Seddon, K, Grant, R, Adams, R, Watts, C, Aiyegbusi, OL, Calvert, M & Byrne, A 2025, 'Wellbeing and coping: key aspects of unmet need of people living with glioma', Neuro-Oncology Practice. https://doi.org/10.1093/nop/npae127
Nikolovski, J, Morton, RL, Mercieca-Bebber, R, Armstrong, M, Hartas, G, Rossiter, B, Fagan, M, Tinsley, M, Snyder, C, Aiyegbusi, OL, Amin-Korim, R, Sutherland, K & Rutherford, C 2024, 'Acceptability and timing considerations when administering patient-reported outcome measures (PROMs) among people with chronic health conditions who are culturally and linguistically diverse (CALD): a qualitative study protocol', BMJ open, vol. 14, no. 9, e083346. https://doi.org/10.1136/bmjopen-2023-083346
Yap, C, Aiyegbusi, OL, Alger, E, Basch, E, Bell, J, Bhatnagar, V, Cella, D, Collis, P, Dueck, AC, Gilbert, A, Gnanasakthy, A, Greystoke, A, Hansen, AR, Kamudoni, P, Kholmanskikh, O, King-Kallimanis, BL, Krumholz, H, Minchom, A, O'Connor, D, Petrie, J, Piccinin, C, Rantell, KR, Rauz, S, Retzer, A, Rizk, S, Wagner, L, Sasseville, M, Seymour, LK, Weber, HA, Wilson, R, Calvert, M & Peipert, D 2024, 'Advancing Patient-Centric Care: Integrating Patient Reported Outcomes for Tolerability Assessment in Early Phase Clinical Trials – Insights from an Expert Virtual Roundtable', EClinicalMedicine, vol. 76, 102838. https://doi.org/10.1016/j.eclinm.2024.102838
CHAPTER Group, Hodgetts Morton, V, Man, R, Perry, R, Hughes, T, Tohill, S, MacArthur, C, Magill, L & Morris, RK 2024, 'Childbirth Acquired Perineal Trauma study (CHAPTER): a UK prospective cohort study protocol', BMJ open, vol. 14, no. 5, e086724. https://doi.org/10.1136/bmjopen-2024-086724
Chapter
Peipert, D, Calvert, M & Aiyegbusi, OL 2025, Patient-centric treatment tolerability: Past, present and future. in M Reaney (ed.), Patient-centricity in the Biopharmaceutical Industry: Are We Nearly There Yet? A collection of perspectives from researchers, approvers and patients. IQVIA, pp. 62-69. <https://secure.constellation.iqvia.com/PCbook>
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